Our Story
On May 5, 2023, Roya suffered a cardiac event while coming home from kindergarten on the school bus. She was diagnosed four days later with mixed type cardiomyopathy. She was referred for care to the Children’s Hospital in Minneapolis where she had echocardiograms, a cardiac catheter procedure, and was given a heart monitor to wear. She wasn’t initially given any further treatment, but in July she developed worsening nausea, fatigue,...
Continue Reading »Updates
Goal Amendment
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The fundraising goal has recently been updated per a conversation between Roya’s family and Rick Lofgren, COTA President & CEO. This letter below from Rick explains the recent... Continue Reading »
Latest Update
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Yesterday Roya was finally discharged from the hospital and unbelievably we had to come back to the ER at 2:30 AM today due to Roya experiencing appendicitis symptoms;... Continue Reading »
Big Day
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Big stuff happened today. Roya was moved from the ICU to the step down unit, she took a real shower, and she got to go outside into the... Continue Reading »
Brave heart
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Roya’s been recovering from her transplant surgery with such perseverance and strength. Despite her ongoing struggles with nausea and high blood pressure she has been able to walk... Continue Reading »
❤️Roya’s New Heart ❤️ 2/29/24
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Yesterday we received the wonderful news that a new heart was on its way to Roya! By 10 am this morning she was out of heart transplant surgery... Continue Reading »
Still Waiting
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Fifty three days so far here at Mayo. I never dreamed that we’d have this as a season of our lives (honestly I just couldn’t have imagined it)... Continue Reading »